Feb. 23, 2023 By Carlotta Mohamed In March 2021, when Gurjot “Jo” Kaur and Richard DiGeorge of Oakland Gardens found out their 15-month-old son, Riaan, was diagnosed with Cockayne Syndrome, they had no idea it would be a diagnosis of a rare, fatal neurodegenerative disease which has no cure. “We felt like we were trapped…
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